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Waiting Waiting Waiting

My rheumatologist appointment is not until August. I will be going on vacation, then coming back to a sh*t storm of medical appointments and tests. I feel rather excited about finding out what in the world is going on. I’m trying to not be afraid anymore.

I got this questionaire in the mail that I had to fill out for this appointment. It took 1.5 hours to complete. It asked me everything you could imagine and then about my family too. History, current symptoms, pain, other illnesses I’ve been diagnosed with. . . . .

I feel as though the ways I feel better right now are if I sleep a lot, get massages and eat comfort food. I feel fatigued all the time, but not tired. I can fall asleep anytime for hours. Coffee does absolutely nothing for me but make me shake. My blood sugar numbers continue to suck despite everything I do.  It’s really strange. Everyone says it’s diabetes but I am not convinced of that.

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Some testing that has been done already proves that my instincts for years saying something was wrong has proven to be true. I’m not a hypochondriac after all.

 

diet, food, lifestyle, stress, type 1 diabetes

Type 2 and the New Beauty Definition

Should being heavier be acceptable in society? I’ve noticed it is a pushing issue right now that women accept their bodies. Stretch marks, C-section scars and being heavier are all becoming more and more acceptable.

Addition Elle presents Fall/Holiday 2015 RTW and Ashley Graham Lingerie Collection At KIA STYLE360

I have to say, the notion of heavier women being acceptable is troubling. The battling issue in my mind is are we as a society saying that being overweight and unhealthy is okay by accepting being heavy? My main concern here, is more type 2 diabetics.

As you might have read, I am battling all kinds of health concerns. I don’t wish diabetes on anyone and hope others that know me feel that they should make strides in trying to avoid getting type 2 diabetes.  Although type 1 and type 2 are not the same, type 2 still involves having a toll done on your body and perhaps taking insulin by needle (hopefully all you need is a pill or two). This doesn’t make type 2 diabetes any less serious in my eyes. You. Don’t. Want. It.

Are we saying type 2 diabetes is okay? Being unhealthy is okay? Are we just accepting that our nation is unhealthy and therefore we should just throw our hands in the air, saying it’s okay? OR are we simply saying different body types are okay as long as they are healthy? Is it empowering?

What are your thoughts?

 

Uncategorized

Don’t Be Afraid to Shine

Beautiful! That’s all that needs to be said.

Neurodivergent Rebel

Fear of giving speeches. A baby step for me is reading something I wrote. Today is a first, I am including audio for this short piece.

Don’t be afraid to shine. You were born to sparkle. Refuse to let them hide your light. Be brave. Be bold.

Sometimes you will be your own biggest obstacle. Have faith in yourself and your own abilities. Do the things you love with joy.

Face your fears. I’m not talking rational fears (like bears if you live in the woods). Take on the fears that are limiting your life. Work through them, keep moving forward.

How many of your life’s obstacles are in your own mind? When you say “I can’t” have you given the problem everything you have or did you half ass it? Don’t tell me, be honest with yourself.

Don’t let your dreams die. Be who you want to be. Step…

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autoimmune disorder, stress

“It’s never lupus.”

original It would be awesome if everyone got a bunch of different kinds of doctors together, ran tests, discussed and singled out an illness together. Just sit them down in a room, give them some Starbucks and watch them go do their thing. It’s a shame the healthcare world doesn’t do that. It would make my life easier.

The nearly all the tests my allergist ran came back. Some things on the tests were unordinary. Component C3 is what I think she said caused alarm. I now have been passed on to a rheumatologist or doctor that deals with immune problems. Oh yeah- I just may have an autoimmune disorder like I speculated.

Like several people speculated, actually. In particular, the word lupus has been thrown around.

That is where we stop- or should I say begin?

 

 

stress, Uncategorized

Waiting…. and waiting….

Well the test result came back. I just can’t read them. So I’m waiting to hear from my allergist.

16u1qhNaturally, I looked up what all these tests that were done on me looked for and what the results could mean. Googled it all. You really shouldn’t do that, by the way. It made everything worse. I still have no answer but I could have everything from an infection to be dying of cancer to absolutely nothing wrong. Curse you google- letting me ponder that I have something serious going on.

I suspect whatever I have is obviously not a good thing.

Or do I have anything wrong at all?

And I have to wait until tomorrow.

diet, food, lifestyle, type 1 diabetes

How to Cook Italian while Diabetic

My first big issue when I became diabetic was trying to cook foods that I could eat. I sadly thought I would have to miss out on my favorite Italian dishes full of pasta and bread. No more eating at my family’s houses with big dinners. Well, that is simply not true at all.

Oh yeah, I’m serious.

seriously

  • Tradition- Tradition is a huge part to Italian food. Sauce is prepared a certain way, so is meatballs…. Now that you’re diabetic consider breaking some traditions while keeping the heart of the dish in mind. Examples are zucchini noodles or cauliflower crust pizza. e5e8c9ce4fdb5a75_cauliflower-crust
  • Experimentation- In my family, we experiment with food and end up making it Italian somehow. Doing this takes practice. Use the typical garlic, basil, oregano, salt and Italian parsley to season your food. It just might turn Italian. Examples of this are seasoning chicken or even your eggs! 7634_1441224061_0
  • Portions- Remember to eat correct portion sizes. This means a bowl of just pasta simply won’t do. You need meat and veggies too. This is not hard to do. Throw in some sausage with your pasta or chicken! Make a salad with Italian dressing. Voila! createyourplate
  • Family: Family is a big part of Italian food. Eat with your family at the table! Make all your food with love and share! We have soooooooo many family members everywhere it’s hard to get together but when we do WE SHARE FOOD. 1575021197-o-1950s-family-around-dinner-table-570
lifestyle, stress, type 1 diabetes

Oh, so it’s not Diabetic related?

I spoke to another older type 1. I learned a thing or two and something came as a shocker. Some things I thought were just my diabetes were not at all diabetic related.

  • gaining weight for no reason
  • inability to lose weight
  • random allergies and the sudden appearance of new ones
  • high white blood cells count

 

don_t_worry-1

Now I will say this: I AM SCARED. I am scared for whatever my body is doing this time. I shouldn’t have googled autoimmune disorders, but I was curious. Everyone is telling me I just have allergies not yet discovered. But what are they this time?

I already have had a lot of foods taken from me. I’m allergic to garlic and onion. I’m allergic to fruit and veggies not cooked (birch-wood allergy). Then allergic to soy too. I also don’t eat plain nuts just for safety. But I’ve discovered I’m allergic to sensitive teeth toothpaste and now all of a sudden I’m allergic to deodorant. Many antibiotics I can’t have either (this really makes doctors nervous of me even more). Every new food or product or medicine I try I fear I’ll be allergic to.

trusting-god_t

I am finally going to just go and see an allergist and get testing done. I guess if something further is wrong- I’ll give it to God because Lord, I cannot deal with another illness.

Me and this other type 1 talked for two hours.  Her conclusion is seeing more doctors to get to the bottom of things needed to happen. I’ve kinda known this to be true all along, just no one ever brought it to my attention. I didn’t know what to do.

So this is another thing I must trust God with. I’ll make myself a nervous wreck if I try and control what’s wrong. I can’t control it anyway. Whatever it may be, it is already in my body. I can do this. I already have type 1 diabetes, right?

 

 

 

insulin, stress, type 1 diabetes

The Lord and Diabetes

This is a hard topic for me. Many bad things have happened in my life that I got angry with God for. Diabetes wasn’t one of them.

I honestly did not curse God or anything like that. I didn’t have long prayers saying to Him why me or asking why he chose to do this to me. I finally got the picture. I got the point. Do you know that song with that line “Jesus take the wheel?” It’s like that. I am learning to give up control.

funny-baby-jesus-take-the-wheel

 

Today, I saw my endocrinologist. I am doing what I am supposed to. Testing, taking insulin, working out. . . .My body, however, is not responding like it should. I still have high blood sugars that are dangerous. I admitted to the fear of having a low blood sugar. The fear of going into a coma, stroke, or death doesn’t seem strange, now does it? It’s my life. So do I live in constant fear or allow God to deal with it?

 

 

type 1 diabetes

The Jimmy Kimmel Test

Now a member of our government, Mick Mulvaney (our budget chief) thinks pre-existing conditions should pass the “Jimmy Kimmel Test” or did you bring about the condition yourself. . . .aka your fault. Jimmy Kimmel’s baby has a heart condition that was operated on and that brought about an arguement about Obamacare and the upcoming healthcare imposed by Trump.

I find Mick Mulvaney’s comment on diabetes to be completely ignorant and dangerous. He said “That doesn’t mean we should take care of the person who sits at home, eats poorly and gets diabetes. Is that the same thing as Jimmy Kimmel’s kid? I don’t think that it is.” People are predisposed to diabetes as with many illnesses.  Just because I’m overwieght I must have gotten type 1 because of it? Um, no.  It was my genetics and I was born with it LIKE JIMMY KIMMEL’S BABY.

Type 2s: I must admit I know type 2s who neglected their health, were predisposed and got type 2 diabetes. Some of them, and I mean some, just don’t care about their health. That’s with any disease though- some people just don’t care.  How do you even prove that?

That small handful shouldn’t f*ck it over for us all.

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I experience frequent burnout. Do I not care about myself? No! This is part of the ride of diabetes. We ALL go through burnout stages and trying this and trying that. Our bodies are different and different things work- or don’t work.

I imagine the government would look at our blood sugar numbers, age and type of diabetes and GUESS who deserves treatment coverage, guess who needs a pump, guess who needs insulin and guess who needs a CGM. AHHH! NO! I do NOT want that.

oh-hell-no-meme-29461

This kind of thing is precisely why I believe socialism CANNOT work in the United States. Our government is too stupid and doesn’t actually care about me as a human breathing person with feelings and a beating heart. They see dollar signs.

Original Article on The Jimmy Kimmel Test